Monday, January 7, 2013

December NIH Visit

The week before Christmas Missy and our dad went back to the NIH to meet with doctors about her cancer.  We learned that her new medication is not working. There is nothing else available to try. They are taking her off all treatments and just placing her on steroids to keep swelling down. After Christmas Missy and our parents met with the local doctors and with Hospice to begin this new stage of dealing with her terminal cancer.

 We are heartbroken. Truly and completely heartbroken. But we are also trying to focus on where we are right now. She is no sicker today than she was before the trip to NIH, we just have more information today. We had a wonderful Christmas as a family and rang in the New Year all together. We will just have to wait and see what 2013 brings, taking it one day at a time and enjoying every moment we have together.


This is harder than I could ever imagine.  For now, our family is spending as much time together as possible.  We are talking and laughing, hugging and kissing and telling each other as often as possible how much we love the other. Someone is always with her. We are all here together, spending time with our Sweet Missy.   Hard days are ahead of us, but for today, we are living in the now.  We are doing the very best we can and are loving each other with the time we are given.