Missy had her appointment at the National Cancer  Institute (NCI) in Bethesda, MD this  past Friday and unfortunately things did not go as planned.  The doctors informed her that there has been new growth from the  tumor in her  brain.  This new growth is  located in the region between the left and right lobes of her brain.  The neuro-surgeon Missy  spoke with at the NCI believes he can remove 90 to 95% of this tumor.  As far as I have heard, the radiation  treatment worked well, but the area that was not radiated is where the new growth has occurred. The purpose of the chemotherapy Missy was taking on a daily  basis during her radiation treatment to prevent this was ineffective.   
Nobody in our family expected this news.  I think we were all expecting the doctors to say the  treatment went well and Missy will begin her chemotherapy maintenance as  soon as possible.  We thought the follow-up's main purpose was to set a  new baseline and from now on we would be comparing new cancer growth with each new  MRI. We assumed she was basically finished with treatments, but instead we find  ourselves starting over from the beginning.  Preparing for brain  surgery...again.  Still, she feels extremely blessed.  We know we can't  take this cancer away, but she's in  amazingly capable hands.  At least the tumor is operable.  After the surgeon removes this tumor, hopefully with  a new chemotherapy treatment in place she will be on the road to  recovery.  We will continue to fight from this point  forward.  Each new piece of information is vital to this fight, so we  take this information, embrace it,  and  use it against this horrible  disease.     
We  know more than we knew last week, and in it's own way that is a  blessing.  We know why Missy has been feeling worse and not better over  the last few weeks.  We know why her headaches are back, why her emotions have been all over the place,  and why she has been so nauseous.  We know that this new growth is here,  and although disappointing, that knowledge is so important.  You can't  fight what you don't know.   
Surgery  is scheduled for Friday morning in Bethesda, MD.  Mom and Missy will be flying up on Wednesday.  Dad, Boo and I  will be making our way to DC on Thursday.  Please pray for good weather  and easy travel for us.  A storm is heading for the Bethesda/DC area right  in that time frame, and we do not want to be delayed.  Thank you for  all you have done and continue to do.  Your donations have helped allow  Missy to take this time off work without the stress of how to get her  bills paid.  She is able to focus on fighting, and that is the most  important thing. Your support has meant the world to us and we just  wanted to continue to say thank you.
 
2 comments:
Rooting for you girl! Gonna kick this and get your "head back together"! Love you! Karen
No new growth where the radiation is a good thing, though. I'm going to be praying for Missy to get through the surgery with flying colors and for her surgeons so they get even more of the tumor out than they think.
Before Sydney's operation, her doctors thought they would only get 95%, but ended up getting it all because things looked a little different when they actually had a closer look. I'm praying the same thing happens for Missy.
Hey, at least this time you guys know what to expect from the surgery, right?
BIG HUG!
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